What We Do

Who are we?

  • Founded in 1996
  • A patient support charity run mainly by volunteer patient
  • Mission Statement: Working to improve the lives of sleep apnoea patients, their partners and families
  • We are completely independent
  • WE ARE THE PATIENT’S VOICE

Our goals

  1. Education
  2. Advocacy
  3. Raising awareness of Sleep Apnoea
  4. Assisting R&D

How will we achieve these goals?

  1. Education
  • Website
  • Sleep Matters
  • Information leaflets
  • Annual Conference
  • Supporting local patient groups
  • FTA Training Module on OSA for Fleet Managers
  • ARTP sleep disorder module for trainee GPs developed
  1. Advocacy
  • Fighting the DVLA to correct poorly drafted EU Directive
  • Getting the NHS to recognise OSA is an epidemic driven by the obesity epidemic
  • Participating on the new NICE Committee to widen the remit of patients that receive CPAP treatment
  • Making sure the patient is at the centre of attention
  1. Raising Awareness
  • Work with other organisations, e.g. OSA Alliance & OSA Partnership group, ARTP, BSS,
  • Membership of the European Lung Foundation
  • Membership of European National Sleep Apnoea Patients Organisation (ENSApo)
  • Respond quickly to media enquiries.
  • Short talks at Rotary Clubs, etc
  • Provide patients for research projects
  • Web optimisation
  1. Research & Development
  • We have started to provide patient representatives for Clinical Trials
  • Decided to make our members database available for exploratory research work
  • Research & Development Projects
    • Screening patients and treating for OSA before planned major surgery
    • Sleep T2D – To analyse the effects of Type 2 diabetes
    • ROSA – A clinical trial to see if continuous positive airway pressure (CPAP) in patients with impaired vision due to diabetic retinopathy is less severe in patients with concurrent Obstructive Sleep Apnoea (OSA)
    • MIMOSA – Effect of intravenous morphine administered in emergency medicine on patients with sleep disordered breathing
    • POSA – Positional Obstructive Sleep Apnoea trial to make patients sleep on their sides
    • The Hidden Burden of Sleep Apnoea – Analysing the Current Diagnostic Pathway and Its Problems and Delays

What is Sleep Apnoea

What do we do

News & Events

Sleep Matters
Newsletter

Media
Enquiries

Contact Us

Members Area