What We Do
Who are we?
- Founded in 1996
- A patient support charity run mainly by volunteer patient
- Mission Statement: Working to improve the lives of sleep apnoea patients, their partners and families
- We are completely independent
- WE ARE THE PATIENT’S VOICE
Our goals
- Education
- Advocacy
- Raising awareness of Sleep Apnoea
- Assisting R&D
How will we achieve these goals?
- Education
- Website
- Sleep Matters
- Information leaflets
- Annual Conference
- Supporting local patient groups
- FTA Training Module on OSA for Fleet Managers
- ARTP sleep disorder module for trainee GPs developed
- Advocacy
- Fighting the DVLA to correct poorly drafted EU Directive
- Getting the NHS to recognise OSA is an epidemic driven by the obesity epidemic
- Participating on the new NICE Committee to widen the remit of patients that receive CPAP treatment
- Making sure the patient is at the centre of attention
- Raising Awareness
- Work with other organisations, e.g. OSA Alliance & OSA Partnership group, ARTP, BSS,
- Membership of the European Lung Foundation
- Membership of European National Sleep Apnoea Patients Organisation (ENSApo)
- Respond quickly to media enquiries.
- Short talks at Rotary Clubs, etc
- Provide patients for research projects
- Web optimisation
- Research & Development
- We have started to provide patient representatives for Clinical Trials
- Decided to make our members database available for exploratory research work
- Research & Development Projects
- Screening patients and treating for OSA before planned major surgery
- Sleep T2D – To analyse the effects of Type 2 diabetes
- ROSA – A clinical trial to see if continuous positive airway pressure (CPAP) in patients with impaired vision due to diabetic retinopathy is less severe in patients with concurrent Obstructive Sleep Apnoea (OSA)
- MIMOSA – Effect of intravenous morphine administered in emergency medicine on patients with sleep disordered breathing
- POSA – Positional Obstructive Sleep Apnoea trial to make patients sleep on their sides
- The Hidden Burden of Sleep Apnoea – Analysing the Current Diagnostic Pathway and Its Problems and Delays
